Originally Posted by dahlek

your appointment?
1] Did this doctor [neuro] just look at your records or did he just look at you and 'decide'?
2- Were any new tests conducted [MRI's, blood tests, nerve conduction tests]? While you were there?
I guess I'm just asking HOW did he base his conclusions? I would ask for copies of your entire 'records' from that place to keep and use [or not] for your own education.
I for one, am pretty sure that THAT would NOT be a neuro I ever wanted to see again....No PN is ever THAT definitive. Not to mention that the 'bedside manner' could be improved more than a bit?
Doctor candor is appreciated, but curt dismissal is not what we pay for! Professional courtesy and respect for us the patients at times is becoming extinct.
As for clinical trials at NIH? Here is todays' listing:
http://www.clinicaltrials.gov/ct2/re...AND+neuropathy

One other thing? We all go to new docs HOPING HOPING and HOPING for answers....We have to try and temper our own expectations of what might be done to ease either the pain or progression of the neuropathy[ies]. At times, I feel we all might have better luck winning a lottery?! Sad but true fact of life.
As you've read, there are many folks here who have PN due to pre-diabetes or diabetes. My own DH has type2 and was relatively not to keen on my own PN issues until he got a small dose himself. I wish he had not gotten it? But at the same time, when I've my 'bad days'? I get a heap more consideration than before. On the plus side? He's now far, far better in control of his diabetes and maybe the PN is healing a bit....time will tell!

Also? I am glad that your husband was 'witness' to this 'specialists' comments. No one ever belives you unless it's seen for themselves! My own DH was 'witness' to my first neuro and we both were doing afterwards: Did I just witness/hear/see what I just did? Definitely a problem....
Keep going to your neuro...if things are especially progressing? But DEFINITELY work hard/harder and hardest on controlling that diabetes!
May the pains diminish somewhat tho in time. 's - j