Thanks so much for all the replies, each in their own way helpful, even when not offering a solution. It is not good that we all seems to go through this, but is good to know that I'm not alone, if that makes any sense. I have been really struggling with this, and ZucchiniFllower describes somethine v similar. so I will ask my Dr about a similar medication, as I do not thinkI can sort this out on my own. Neil, thats exactly how I have been trying to deal with things, while wending my wobbly way down the high street! IT begs the question I suppose, as to why all the emphasis on PD is on tremor and so on when there are things like this that wreak havoc with mobility.

ZF, it's very interesting about the LRRK mutation as what I have is exactly the same as my grandmother, along with a couple of other inherited things that are both autoimmune issues.......

Thanks again, would still like to hear from anyone else with this problem as it seems to affect quite a few of us.

Lindy