Oh, TIA,

I am sorry you are facing surgery, even tho I know it is urgent.

I am 5 weeks out of hospital for surgery on my jaw, and still recovering
from the treatment I got there. I am glad that your Neuro is on board, it
should make any bumps in the road smoother to have someone who knows
about MS in your corner.

I was promised that everything was accounted for, but my meds were not
available, I couldn't bring my own. I had bladder problems (stress induced)and was cathed 3 times in five days. I could not get the floor staff to contact my Neurologist to explain about MS and bladder problems.

I was unable to get straight answers about the meds I was getting and
the treatment, clear liquid for 5 days, (about 100 calories per day) plus
the MS left me too weakend to walk. I fell and bounced my head on the
floor trying to get to the bathroom. I got a new wrist band saying "danger
of falling" and that was it. Not more help.

Please Please Please try to get your doctors to talk to each other about
your unique situation. The nurses and floor staff have to follow the orders
they get, if you have a special situation and if they don't get orders from
a DOC they will not listen to you.

Let my miserable experience be a warning, not a given. My Surgeon apparently doesn't "play well with others" and has a problem sharing or
accepting information from other Drs. I would go to the end of the earth
to avoid this again, and anyone else I can warn.

all the best, kami