Quote:
Originally Posted by pintorl
Hi group,
I just returned from a 2 day hospital stay, trying to figure out why I had sudden and progressive double vision and eye drooping. The current working diagnosis is ocular MG. The lab work is not back yet, CT and MRIs negative.
My question to the group is: from your personal experience, how soon could I expect 60 mg of mestinon, every 6 hours, to resolve my double vision. Or, how soon should I tell the neurologist, it isn't working? I have only taken 4 doses, but I still have double vision. This is very disturbing so I am wearing an eye patch. I am a working mom with 3 little kids so I really need to find out some more information.
Thanks for any advice.
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Your situation sounds so familiar! I also seemed to start out suddenly-w/double vision & eye drooping, but also w/ extreme muscle weakness. I understand (I also am a working mother of 2 young children) and I wore an eye patch for a few weeks. It took me a couple of weeks before my vision improved to the point where I did not need an eye patch. Keep taking the meds & if you feel that you are not having improvement call your neuro. They may decide to increase your mestinon. (That's what happened w/ me.) I understand how frustrating & scary this can be. I was in your shoes just a year ago. I also suggest that you look on the MGFA website & MDA. They can be good sources of info. Remember that knowledge is power! I wish you well. Good luck & peace.
Nancy Lee