Thread: Tysabri Information & Check In
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Old 03-28-2008, 10:51 PM
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Join Date: May 2007
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Quote:
Originally Posted by sheena View Post
Thanks for the post, you don't understand. I have had 2 neuros and 1 GP who saw the mri state they all believe I have had this for years, prob 10 plus. It remained silent or too silent for me to worry about a prob. It distroyed my brain. I am very, very advanced. They all state I have no other choice then TY. If this drug does not work-nothing will help. I can't take steroids and stay on TY. This is my understanding. I don't know what is going on - I just need to understand what is going on. By take me out I do mean complete disability!
Sheena

If you are having an exacerbation, you can have IVSM to treat the exacerbation. The steroids you cannot have while you are on Tysabri is the monthly pulse steriods.

I am not sure who told you that you cannot have steroids and stay on Tysabri, but they are absolulely wrong.

I too am sorry that you are not doing well. It sounds like you need to call your neuro first thing Monday morning.

Take care Sheena...and please call your doctor.
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“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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