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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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re: Severity of MS
Sheena -
I think you should ask your docs to clarify everything for you. My neuros said the same thing, re: have probably had it for at least 8-10 yrs based on the lesions. Several are completely black holes - no longer grey. And they wouldn't even count the amount - and the size - several were larger than 1-2cms. These don't just develop over night...showing that they've been there a long time.
My doc has said aggressive and progressive for my condition. Also, because of where the lesions are - I am most likely to be "attacked" and disabled cognitively and physically.
As for Ty being your only chance - it's fine and dandy to say that to you - but they don't know for sure until and unless you have tried something else. I know you went straight to Ty. I did copax for 1 month - but went to Ty because my doc said it was my best chance. However, if it fails - well, I'm not just going to give up - there are the chemo drugs and gasp - the interferons. I've also read that some docs are prescribing copax and rebif or avonex at the same time.
I don't know 100% about the steroids and Ty - I think you can receive some high dose steroids for a flare and be okay. Your doc and the TOUCH people should know this info.
Hang in there - and as much as you can, REST, try not to STRESS.... I def think your sickness right now is making everything worse - your body is just freaking out...
Sorry - hang in - feel better!!
And call your neuro's emergency # if you need to this w/e!!
~Keri
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