I am new here and looking for ideas. I was diagnosed with Lyme disease several years ago and recovered to some level on a lot of antibiotics. However, two years ago I developed throat inflammation, thrush and severe headache with vertigo, nystagmus and vestibular nerve damage. I have never recovered from this and have an ongoing constant headache, mostly on one side of my head centering around my ear. My vision in that eye has deteriorated. I also have memory problems, especially when my headache is the worst. I have had maybe 4 or 5 days in two years without any symptoms.

I just came across an article from a Lyme specialist saying he found carotidynia was common in Lyme patients. I have not had this label applied to me, but it sounds like my situation, including the pain just to one side of the larnx. I actually had never noticed that I have a tender spot there - mostly the ear and head pain are so bad I would not have noticed a pain in the neck!

I have seen two opthomologists, one ENT and two neurologists with no real diagnosis. The only thing that helps me at all is Lyrica, and it makes me even more spacy during the day. I do sleep better at night with Lyrica. Oh, I didn't mention that I have anxiety problems many days. These also disappear on the few good days I have. Bright lights and loud noises affect the nerves in my leg on the same side as the head pain, or where the head pain is worse, since I have damage on both sides.

I wonder if we all are carrying a chronic infection such as c. pneumoniae in our areteries? Has anyone noted any relief on antibiotics?

Thanks for any ideas.
GoWest
Las Vegas, NV