We've been very interested in this thread. Kevin's feet are now so deformed I fear at some point he will not be able to walk. We started with a new neurologist this January. She was the first one who asked him to remove his shoes and socks. When she saw his feet she could not believe it.

We have since learned that if a really good movement disorder specialist had seen his feet years ago, PD would have been dianosed much sooner. He now takes a muscle relaxer at night (Clonazepam) and also Effexor XR which is an anti depressant but because of the way it works, it helps with movement issues.

For the first time in years, he is getting some sleep. The pain has been relieved or at least become bearable and the feet are not turning in so badly. His toes are awful but he wears sandels almost exclusively and that helps. I really feel for any of you going through this!! It does not get a lot better - even with DBS.

We have since met far too many with PD who are having feet problems but for some reason it is seldom discussed!?