So much going on - it is overwhelming - and I dont expect anyone to be able to "cure" anything - just help the back pain, if they can find the reason for the PN great, if the IVIG is not needed (and is on hold now and this doc wont give again until she shes evidence of need - fine), if is is inherited then I will know what to expect as the progression has continued and paraneoplastic - well, we'll see.

As for J-tube - most people with gastroparesis dont get to go "back" - the goal is to keep that gut working (stomach) and the tube bypasses that and the less its used, "you loose it" an option they look at very seriously at all for someone like me - and they will try anything before putting in one cause the nerve damage isnt going to reverse (at least with our current medical knowledge and the fact I've already had it for six years with decline, not improvement) - also dealing with the serious infections and a pump of "formula" to lug around combined with constant trips to docs and hospitals is something they also consider, cause again, its usually a no turning back usually in this type of case......

Again, we'll see..... we'll have to see what the docs say...