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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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Gearing up for my first...
Well - tomorrow (Tuesday, April Fools Day) - I am scheduled for an 8:30am appointment with the oncologist for my consultation. I was originally told my infusion would be same day - but last week I had heard otherwise, so that remains to be seen - no matter how much I begged, cried, and had anxiety attacks - no one would confirm anything other than the consult part of the appointment - nor would they tell me next available day that I could get the infusion...all they kept saying was, "It's up to the discretion of the doctor."
However, they did confirm that there were empty "chairs" available for infusions - and that the pencilled me in for one of those tomorrow morning. Of course, at this point, I don't believe anything unless I can see and touch it.  And that's often not good enough as my vision is sucky - lately lots of double vision....and my touch - well, my hands keep dropping things.
I am working VERY hard to believe that my first infusion will be tomorrow morning some time. My anxiety has been overwhelming...as I posted late last week - this part is so unfair - it's bad enough that this entire disease has a mind of its own and I can't control it....but not to be able to know a firm time for this treatment is beyond mind-blowing at this point. This part of the MS should not be causing this much pain and problems for me. Oh well...c'est la vie.
So - since I've been so distracted by my anxiety over the possibility that I may not have the tx tomorrow - now that I'm facing it in a little over 12 hours - I am starting to get nervous.
I wonder what things would preclude me from being able to receive tx. No one will tell me. Should I eat before I go - or not. I'm not going to premedicate - but I did just buy 3 kinds of benadryls - liquid, liqui-gels, and caplets. LOL. Must be prepared. Not sure if I should take my regular daily meds (cymbalta, allegra-D) or not take them. Any advice??
My nerves are kicking in. Sigh. 
~Keri
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