Hi!

Thanks Cheri for moving and merging!

I'm not sure how I had messed that up so! ( I am very tired and in pain.) Yet, I don't see an option for fixing it, so...I will leave it and hope it can be deciphered where it was broken up? I think it will work out okay? Thanks so much for your help!

Thanks kmeb for you words of encouragement and important remnders! None of us wants to go through the ER...or through any of this...do we? I don't want to. Yet...!

Previously, they had not determined the exact cause. For awhile, they'd thought a porphyria was involved; yet, that was ruled out eventually. Then..they'd ruled out other causes.

They'd ended up diagnosing "an immune-mediated inflammatory process of the CNS and PNS" at that time.

I've since been diagnosed with antiphospholipid antibodies (Just 3 years ago.)

I have been disabled with CFS with abnormal brain scans for many years and then..had started obtaining a collection of autoimmune illnesses.

A also have a spndyloarthropy...just in the midst of determining whether ankylosing spondylitis or psoriatic (without skin manifestations). Also have asthma, hypothyrois, etc.

Have osteoarthritis, too, throughout. Yet, have kown large osteophyte in cervical region, at last MRI (3 years ago, "osteophyte" was not far from spinal cord.) (I currently suspect disc problem/other inflammatory problem in low spine..I think that has been the case for at least 2 years ow.. I have to constantly ice it.)

Yes, it would be nice if Neurology Clinics were not so overwhelmed and could be a little more helpful in being available to the person with any exacerbated neurological illness? I kow what so many people go through...all too often.

It's so difficult anyway..and then to have to keep pushing so hard to get any movement from the Neurology Clinic is... additionally disheartening, in my experience.

At the same time.. I must admit.. I am afraid of all of the available treatments. (I hate to admit that. Yet, it is true.)

Still waiting on Neurology. That may be the case for awhile..maybe even days.

Thanks again!