Hi There,
I'm new around here but Not new to MS!
I'm posting here today because I have been on Tysabri since Oct 06. It has been a Looong haul to say the least. I was DX in July 01. I started Avenox Aug 01 and continued until July 06. I even tried LDN for a few months. It worked great for my bladder but that was about it for Me.
I just had Tysabri #19 Yesterday and I am Living Life Again!!!!
It took several months until I started to Really feel better. I am now living a full life - well as full as possible as I still have that crappy leg that has followed me around for years but I Now have the energy to drag that crappy leg around.
I can walk So MUCH better than I did just a few months ago. My balance has improved dramatically.
A few weeks ago I was able to take a short hike down to the river and played in the water. It was such a blast!!! Just a Wish 2 years ago.
Last week one of my Dreams came true when I was able to dance like Crazy all by myself without falling over - What a night that was!!!
I know that we are all different and meds are a choice blahblahblah I know that whole spiel........but For Me Tysabri has been a WONDER DRUG!!!
I'm not here to talk Anyone into or out of Anything. I'm just here to share My experience with Tysabri. Yes - There are risks. I've always been a Risk Taker.
In the beginning I had to drive myself 275 miles each way in the winter to Portland, OR for My Tysabri treatment - Talk about Risky!!!
I'm finally getting infusions close to home now - Thank God!
As my reward after each infusion I order my favorite Thai food To Go. I call it my Ty-Thai day. I actually look forward to it as I know with each one I am doing Something Positive for Myself to fight My MeSs. And l LOVE Thai food
I may die from PML - I may not, But I played in the river and I danced and laughed and lived. I'm going to dance each and every day that I can..................
This is a copy from another board that I posted on a few months ago.
Things have just gotten better as each month goes by
Life is So Good,
DD~
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"If you think you can or you think you can't, you are right either way.