I'm riding out this crazy weather in the Southeastern US. since November I've had flares at about 3 per month. I'm looking forward to more temperate weather and flares backing down to 1 every 4-6 weeks. Being in 'surprise' pain is so very frustrating - I can't plan anything. and I am spending 80% of my time in my jammies.

On the up-side my SSD/SSI is going to go thru - Just had my senators' office confirm it with SS today. Just a matter of time. I think I'm going to plan a trip to Denver, if Dr. Annest will look at me - just as a followup. I want Dr Clark (pulmonologist) to look at me too and I want to see the Pain Mgmt Dr again for a specific referal to someone here locally who can deal with me. I live in fear of being in a crisis and not be able to talk.

Keeping you all in my prayers, esp. those having seriously scary times. You know who you are.


Anne