Quote:
Originally Posted by CZZ74
Diana I can not thank you enough for sharing all of this - so so thrilled for you that you are near to pain free- it is just so thrilling it is possible.
Diana- I have had a very diffucult time getting a script for this here in florida. the ones attached to hospitals cant take you as RSD is not approved on their list. The ones that are not attached to hospitals do not take insurance.
But I would pay anything I could if I thought it was safe. I guess I have two questions, are the independent ones safe? And may I ask why you had to begin in Canada? I didnt know if you lived there or had to travel there for treatment? Thank you again so very much ! Sincerely, CZ
Ps I have had the coma treatment, which was very sucessful however did not last.my full body rsd returned.
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CZ,
I did my first HBOT in Canada, for several reasons. One, It was less expensive than the US. You stay in a facility, with access to a kitchen, fix your own meals, and pretty much take care of yourself. You can take a care giver with you. This was cheaper than treatment in the US, plus, hotels and food. Second, the owner has a daughter who had RSD, and if I remember correctly Cerbal Palsy, he is also a scuba diver and pilot, so I felt comfortable that he knew what he was doing. Thirdly, it did not require a prescription, but I paid out of pocket. I can not say enough about this place. They are amazing, they treat children from all over the world, with Cerbal Palsy, stroke victims, MS patients and you get a first hand view of what HBOT treatment can do for people. I also got to watch how physically challenged children and their families live each day counting every little improvement they see as a most amazing blessing. I think there are probably a lot of fine HBOT centers in the US, and I believe they have doctors on sight to write the prescriptions for treatment, after an examination. Will insurance pay for it with RSD as a diagnosis, probably not.
Just to purchase oxygen I have a prescription for
" Physically fit Hyperbaric Oxygen Therapy " (experimental) That is how the prescription reads. It has taken years for me to get to this point. I had been diagnosed with 4 extremity RSD since 1989. I feel that if I had been given HBOT sooner I may have had faster, better results. I guess I'll never really know. I'm just happy to be where I am at this point. I hope I have answered some of your questions. Please feel free to ask again, if I missed anything or something new comes up, I do wish you the best. Diana