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Originally Posted by ejcronje
Thank u all so much for your replies! Glad to know someone is listening. You have no idea (then again I think many of you do) how many tears I have cried over this.
I cannot rememer all my tests, but the ones I do remember I will list:
Basic blood work - normal
Auto-immune panel - negative
Liver panel - elevated liver enzymes (probably due to fatty liver)
2 hours glucose tolerance test - indicate insulin resistance
thyroid - normal BUT thyroid uptake scan show hypothyroidism
B12 - 209 - normal according to the doctors
Hepatitis - negative
HIV - negative
Brucelloses - negative
Epstein barr virus - previous infection noted but not active
Cytomegella virus - previous infection noted but not active
CT scan of brain - normal
MRI of brain - normal
MRI of spine - show some disk problems, but according to neuro everyone gets this with ageing
Nerve conduction study of hands and feet - normal
CT scan of abdomen and pelvis - normal
porphyria - negative
colonoscopy x 2 - normal
gastroscopy - chronic gastritis due to H Pylori infection
this is all I can remember for now. I know no tests was done for small fibre neuropathy. I've decided to stop my Lyrica as its making the burning worse.
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The B12 is NOT normal. The old criteria for B12 is very out dated.
You need to start supplementing NOW ...with a product like I gave you above.
In Japan they treat anything under 500.
Low B12 leads to many neuro symptoms.
Please go here and read up...rose is a member here and has been advocating and helping people for years whose doctors are ignoring them.
http://roseannster.googlepages.com/home
If you scan our vitamin forum there are many B12 pages as well.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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