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Old 04-02-2008, 11:51 PM
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Join Date: May 2007
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tovaxin_lab_rat tovaxin_lab_rat is offline
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Join Date: May 2007
Posts: 7,009
15 yr Member
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Frank

I am sorry you are doing so bad right now but hope the steroids kick in soon and you get back to your ol' self again. Just for the record, the steroids you are taking aren't the same kind as those ball players take! LOL!

Anyway, all the steroids I've taken for all the horrible exacerbations I've had give me headaches every darn time...and I am a migraine sufferer. I've had migraines for a very long time. We finally got those under control with Topamax but I still get headaches, more like I've been hit over the head with a baseball bat, when I do steroids.

As for having symptoms on both sides of the body, yes...I do. I will have humbness, tingling, drag foot on both sides of my body during an exacerbation. I've had my body from the entire waist down completely numb for 2 months...both legs, not just one. So, it does happen. I've had both hands and arms not work or feel anything.

I think it depends on what lesion is active when I am having an exacerbation. And just how long I wait until I finally decide to call for the steroids.

I know from experience that the longer I wait, the worse the inflammation gets and the more parts of my body are affected. I've learned that the sooner I recognize the signs and start steroids, the quicker it nips the excerbation in the bud, so to speak.

Anyway, thought I would share my experience with you.

I do hope you get rid of the headache. I don't like them and am certainly happy that the med I am on works.

Take care....
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Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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weegot5kiz (04-03-2008)