Thread: Tysabri Information & Check In
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Old 04-03-2008, 01:26 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I think all of us should take a heads up from Barb's post about her infusion center staff not hearing her when she had her infusion and had a reaction.

Please ASK your infusion center staff what the procedure is for someone who has a reaction. Make sure they have a plan in place that ALL the staff know and follow in case of emergency and what YOUR part in getting them to YOU is.

A reaction can happen at anytime, not just at the beginning.

While my infusion has become a normal part of my life, I've never dismissed the fact that there can be a problem at some point and I made sure that I knew what I had to do if something went wrong, both during infusion and after I leave there and go home.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
sheena (04-03-2008), tovaxin_lab_rat (04-03-2008)