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Old 04-03-2008, 09:56 AM
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Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
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Thanks everyone for your support. I have an appointment in a little while with my neuro. I receive my infusions at a neurologcal clinic. They put you in a exam room by yourself and you have the option of sitting on a hard chair or laying on a padded procedure table. The nurses station is located outside of the room/across the hallway, but it is really busy there and rather loud. Luckily they did show me where the panic button was during my second infusion. I do think they need to retrained in the tysabri protocol. My nurse usually forgets to ask the 4 questions and I had to remind her yesterday that they were supposed to slow down my infusion. I think they only have a handful of patients on tysabri and they said I am the first to have any problems. That figures! I always have enjoyed being the first in the class. I sort of feel like I have been run over by a semi truck today.

I have suggested to them that they need a better and more comfortable set up, and I also listed these problems on a survey I received about my neuro and the clinic.

Last edited by barb02; 04-03-2008 at 09:57 AM. Reason: typos
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"Thanks for this!" says:
Jodylee (04-03-2008), Riverwild (04-03-2008), tovaxin_lab_rat (04-03-2008)