Hi Cherie
I remember the thread. I'll never forget that headache. After my post and your replies with good info, I did notice an improvement when lying down. After 2-1/2 weeks or so, it resolved itself. No amount of med was able to touch the pain. I did alot of ice on my neck and forehead to try and numb the pain as I recall.
I've yet to experience another headache as bad, but have been getting migraines more frequently the last 3-4 months.
When I last saw my neuro 11/30/07 her temp nurse dismissed my headache as having absolutely nothing to do with the MS. She said you can only get a spinal headache from a spinal tap.
We clashed when she was a temp for my other doc about 8 years ago. Well she has been replaced. Thankfully. I have an appointment on Monday 4/7 and will be talking to my new nurse practitioner and my doctor about the headache.
I figure if MS can cause my siezures why can't it be the root of my headache too.
I'm hoping Frank can get some relief. He must believe it's not just in his head.
(no pun intended).
Thanks for the inquiry. I hope you are feeling as well as you can.