Quote:
Originally Posted by barb02
Just got back from my appointment and my neuro admitted he does not know what to with me. He wants me to on some type of treatment but is not thrilled with the idea of the chemo drugs. He has a patient that is going into heart failure after being on cytoxin. I am not willing to go that route at this point either. He is requesting through my insurance (HMO) a referrral to a ms center/specialists at Barnes Hospital in St. Louis. He already talked to them and they said that I absolutely had to stop tysabri; that my reactions would just get worse. He does not forsee any problems with getting the referral. So I am just going to try to destress for a few weeks and then see what the specialists think. I imagine it may take awhile to get an appointment.
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Barb,
I hope that you can find a medication that helps. It may be worth your time to see if there are any MS Medication trials whithin which you can participate. Alternatively, maybe you can go back on one of your pre-Tysabri medications which seemed to work.
I am crossing my fingers for you.
-Vic