Hi again, Keri.

Phew, I was in a bad mood yesterday, wasn’t I?

I still think he was wrong to bring this up to you Keri, when you are already feeling so vulnerable in your life, but I will try to be not as black and white in my thinking today.

When I was at another forum, a Neuro published an article about what he read from patients on that forum, and praised how much accurate information was actually being provided there. Of course not everything that we say is accurate, but with the right checks and balances (other’s questioning our interpretations), eventually the correct information makes it out there. I thought that was really encouraging to hear.

This was his article, “What I've Learned from E-Patients”:

http://www.pubmedcentral.nih.gov/art...?artid=1182328

I knew that neuros and doctors visited (and POSTED) on these forums, as well pharmacy company investors (not everything that glitters is gold...), and even our family members sometimes. I do think we have to be careful not to identify specific people/practices, as anything we state is possibly tainted by our perceptions at given time. However, we can accomplish that by not specifically identifying ourselves (someone may know the “sister” we are complaining about), or our doctors, etc.

If your neuro’s only point was to warn you that others are reading, that really wasn’t such bad advice. I don’t think he should have made you feel guilty though, especially if you did not identify him.

Come to think of it, I never liked your neuro from the get-go anyway because he scared the wits out of you right out of the gate. But that’s another story . . .

Anyway, it is a public forum, but the primary purpose of it is for us to exchange information and support each other through the trials and tribulations of this disease. Perhaps sometimes we aren’t rational or fair in our assessments about events . . . but that’s life, especially with MS.

Keri, it’s up to you, but since you know what you wrote (and are left feeling like you have done something “wrong”), you might want to go back and review your prior postings to see if you said anything that specifically identifies him or his practice. If you did, and you WANT to erase it, the moderators can help you with that. If you didn’t, then perhaps just consider this as a lesson learned about who may be snooping around here on any given day . . .

I hope Mr Neuro learns from this too though.

Cherie