Deja--That is one of the most incredible and upsetting stories we've heard here, and there are lots of doozies, let me tell you. Wanting to do plasmapheresis because he was doing a study and keeping your slides. I'm speechless.

Except for this: I put up a site where one can make spreadsheets of all the tests you've had: http://www.lizajane.org

I have a feeling you've had lots of tests listed, and can fill out these charts. Once you do, it's way easier for doctors to get a sense of where you're at, and for you to pick up errors and missed abnormalities.

The sheets will open in Excel, and you can save them or hit the download button and download. You can then change the way they look, or what they follow.

Just to see a sample, here's a link to mine. Before you get totally intimidated by it, just know that I've been making doctors give me my lab results for years, and charting them for about 5 years now. There are 6 pages here: if you do look, please click at the bottom to see the different pages. You'll see that I have sheets for autoimmune tests for neuropathy, B12, gluten-intolerance, as well as porphyria and more ordinary problems such as diabetes. My doctors love that I bring them these sheets. Each visit they can throw out the old and put in the new.

http://www.lizajane.org/PN/Users/liz...Feb 8 2008.xls

But you know, it does sound like you have an immune neuropathy which can produce rapid changes in function and pain. Most immune neuropathies are treated with IVIG; some with plasmapheresis. I'm sure you'll find many people here, and on the CIDP board with experience in these areas.