Dear Liza Jane,

Thank you so very much for your responses!

Thanks, too, for sharing your spread sheet!
You were so right, I would have felt very intimidated by it if I had not seen yours first!
Actually, I still feel a bit intimidated by it!

What a great idea though!
How generous of you to share your "work of art!"

I will have to get the information together and try to organize it all this well!

I appreciate your comments...very much!

I am really feeling "lost" in all of this right now..for some reason.
I'd hated having PN so much and once I'd had a reprieve, I must have "dumped all of the info. in my head!" That may be a good thing, if it was information now outdated and/or was erroneous to begin with!

I think some of the "lack of recall" is a side-effect of the current neuro process (exacerbation) and I also think it's also partially an "emotional block." I was so incensed by all that had gone on before, as if the PN itself was not enough pain... without the "unethical" docs involved.

I really appreciate something you had written in a different thread...about self-advocacy. While seeking justice and all is very important, there have been times when I was far too ill to pursue it all!

It was very disheartening to realize that many other docs knew about all that had gone on and had advised me to "report," etc. Not a single one of them had an ethical responsibility to report... even knowing how ill I was at the time...and even while coaching me to "report" and file suit! (Some of them had spoken with the neurologist involved and knew first hand exactly what was going on and had told me so.)

It is very important to be able to do this...self-advocacy! Yet, sometimes, it is realy too much for someone acutely ill/impaired. I am not one to "back down" on finding justice and on pushing "ethics." Anyone knowing me would tell you if I can walk, talk, think, I would be kicking some butt on things like this; yet, the neuro docs involved knew I was too ill to nail them as well as I would have been able to when not so profoundly affected by illness at the time. I am also "the one" in my family ...even my extended family to hold someone accountable. (I have one sister likely to do this, too; yet, she now lives a few states away from me. Others in my family...just don't have it in them...even when well.)

I appreciate your acknowledgement that although we all need to be prepared for a great deal of self-advocacy, there are times when we are very ill...too ill to perform in this arena as well as we otherwise would!

I hope all are having a comfortable, and even enjoyable , weekend!