Joelle
You know you and your family are always in my thoughts and prayers.
Everyone who suggested hospice is right - you can become involved with a hospice organization in the area long before you're to "that point". My Dad was in hospice for 10 days and I honestly do not know what I would have done without them - they are incredible.
I hope your visit home won't be as stressful as you're anticipating. Make your sister and brother help - I know, easier said than done.....do what we talked about - print out the material from the website and give it to them. Especially for your Dad - maybe it will help them all understand what you're dealing with.
Like I've said before...I wish I was closer so I could help you. Wouldn't we be a pair??
Your parents might just say "thanks, but no thanks"!!
I hope you'll keep in touch while you're up in PA. You know you can call me anytime day or night.
Take care - we'll miss you here on the boards. If we do see a post from you we'll know you're sitting on the counter in the bathroom holding your phone up in the air and typing!!