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Old 04-06-2008, 06:57 PM
Perryc Perryc is offline
Junior Member
 
Join Date: Aug 2006
Location: Washington DC
Posts: 77
15 yr Member
Perryc Perryc is offline
Junior Member
 
Join Date: Aug 2006
Location: Washington DC
Posts: 77
15 yr Member
Thumbs up The missing ingredient...

The Clinical Research Learning Institute will provide an important resource for the PD community. It will formalize the lessons learned by the Parkinson Pipeline Project over the past 7 years to focus attention on the 15 year pipeline required to translate investments in research into therapies for patients. Recruiting and training advocates to provide the patient perspective to the clinical research process will help us to expand our efforts to offer regulatory consultation to sponsors of clinical trials from the patient perspective, just like we already do for FDA. Participation of the graduates of this Institutes at local levels as "Research Partners" will fill very important roles to facilitate clinical trials, including education and outreach to ccommunity doctors, consultation to IRB's on PD issues, and counseling and support for participant's in clinical trials. Our experience in the Pipeline Project has been that each of us benefits personally from taking action and we take pride in our too slow by steady progress toward accelerating the introduction of new therapies. If you are interested in helping yourself while helping the cause of today's PWP, apply for the inaugural Clinical Research Learning Innstitute.

Perry Cohen
Director, Parkinson Pipeline Project

"The missing ingredient in the development of new therapies is the voice of the patient"
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