I haven't had hereditary PN diagnosed for sure, but the doc, has told me several times, he feels that this is an autosomal dominant PN...however, there are some tests that need to be run for the known hereditary PNs...it is still possible that even if those come back normal, I could still have a hereditary PN. There is a cost to these tests and I think some reluctance on his part to order them.

Interestingly, my son, has had two dentists say his issues are not dental...but something with soft tissue...and the last one, he did say potential salivary gland, parotid gland issues....hmmm??? sound familiar?? So he is still struggling with this...we will work thru it. He has had his gum and several teeth cleaned out, they drilled in there, and the dentist does not see this as the cause of the infection. He is still in pain and swollen but not like he was. Yes, this is the kid who is getting married.

They extracted almost 2ccs of pus, with a needle and then cut open his inner cheek and gum and more fluid and pus came out.....he has been filled full of antibiotics, but the infection is receeding rather slowly...well, we are keeping an eye on him. I just find it interesting that he has issues with his salivary gland tissue, and I have too, but they can't seem to define what those issues are....right now, he is just infected...so that is the focus. He has seen either a dentist or ENT every day last week, more to come this week.

I have chronic sialadenitis, which the docs tell me is PN related, as my docs keep telling me I can't have Sjogren's as nothing is 'inflammatory' and my blood is negative, and I am so sick of being on that merry go round. I have the dry eye thing but they say it's my PN. My immune system could be shot from Lyme disease too....Lyme can wipe out your entire immune system. I dunno.

Eh it is always something. I had a finger go fungal in less than a weeks time or so...and it hurts too, inside the finger, so I will have that looked at....I will get the sinuses taken care of this week too, maybe that will help my energy level which is zip right now. However, they better treat for yeast while they are at it, if they give me antibiotics or I will be sick from yeast....ugh...I need balance.

I have tried proton pump inhibitors in the past and it doesn't seem to affect the esophagus stuff....I think it is neuro in the esophagus, at the root of it...I do think the yogurt being poured in there several times per day, helped.