Quote:
Originally Posted by Tinkerbell1921
HI Everyone:
I am the mother of a 10 year old little girl who was diagnosed with Neurocardiogenic Syncopy about 2 years ago. I would just like to get to know other people who have been diagnosed with this problem, or who have family who do. There do not seem to be a lot of support groups for this. She seems to be doing "OK" on the Florinef that she is on when she decides she is going to take it of her own free will. However, she is non compliant with the drinking of the gatorade and the salt issue. It's just that I am so frustrated with her sometimes when she won't comply. She has had some REALLY BAD spells and seizures and I just can't make her see that if she doesn't take her meds and drink, I am afraid that the next time she has a seizure or fainting spell she won't wake up  !!!
Thanks for listening:
Marie Russell
Lexi's Mom |
I was just reviewing your blog, and my daughter has orthostatic presyncope. Your daughter's symptoms appear to be similar. Her doctor stated that she will eventually "grow out of it", but I still worry. She has to make sure she gets enough fluids (such as gatorade), and it seems to get worse when she is doing physical activity (playing on school basketball team). I honestly thought she was going to pass out, and her father seems to think she is just out of shape. She is not overweight, loves to be active, normal as can be. She saw a cardio, an neuro, and they want her to continue with her activities, just be sure she has plenty of fluids, (which is supposed to open her veins for blood to pass through better.) Unsure if this helps any, but I pray that all goes well with your daughter.