Wait a minute-the swollen parotid is YOURS or your son's?

Sounds like he has a parotid infection, from what you are describing. I know that the parotid can get swollen without infection from a duct being plugged with a stone, which forms from the saliva. They can get huge, and I'm sure infection is a big risk if that's allowed to continue. But I'd think an ENT would recognize that and know what to do. This sounds like a nightmare for him. And you.

Parotiditis, chronic sinus infections (dry sinuses?), neuropathy--and they're not sure about sjogren's? Well, when my sinus guy last yelled at me for not spraying my sinuses enough, and I told him I was worried about sjogren's, my mouth and nose are so dry, he said that in that case every patient of his would have it. So maybe not.

But I do have fungal sinusitis. Quest can culture for fungi now, didn't used to, but Mayo Clinic is the best place for the doc to send the tissue. Their lab cultures for everything. Including the culture for acid fast bacilli--TB like organisms, which I now have.

For the fungal sinusitis: I irrigate with amphotericin, which is made by a compounding pharmacy, and take Diflucan. I get liver tests monthly to make sure the diflucan isn't harming my liver. So far, so good.

I'm on lots of antibiotics for the atypical mycobactera, and I take a probiotic with each dose. My doc says that you get best results taking it WITH the antibiotic, even though intuitively you'd wnat to take it in between. It has to do with having thousands of the good bugs in the presence of hundreds of the bad bugs, and the antibiotic killing all the bad ones, but just a percentage of the good. If you take it in between, the antibiotic gets to kill them both off. Got me! That's what he said.

I think a lot of us here have both sinus problems and pn, and I wouldn't be surprised if dryness wasn't one of the factor.

Hope you and your son get through this; sounds awful.
All my best,