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Old 04-08-2008, 02:13 PM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by Darlene View Post

Sorry to here this Ali. Andrea, Please keep us up to date. You are in our thoughts and prayers.
Hi Andrea and Ali,

I'm so sorry about the tremors and jerks. Mine were pretty active in both legs and arms. Also electric shocks body wide. Would lift the head right off the pillow. Dr. started me on Neurotin slow at first and up to 3200 mg. to get everything under control. The side effect I noticed most was extreme tiredness. When Lyrica become used more, I switched over and up to 400 mg. still tired but rarely have any tremors or jerks. They Lyrica was more effective pain wise and was able to reduce pain meds from 6 a day to 4 per day. vicodin-5/500. I would do a lot of research on the scs before undergoing that procedure. There is a lot of information on brain communities in past years. Hope the best, I'm on a lot of meds, one is lorazepam 2 mg. 3 times a day. I find when I'm calm and more relaxed- less likely to have other bad symptons. Take care, Loretta Jewell RSD 14 years after surgery. 59 yrs old.
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