This sounds very similar to what I have been experiencing for the past year - except nothing has been diagnosed.
My symptoms started after an injury - my R. arm is still larger than the left - throbbing pain which travels up the forearm into shoulder right through to neck. Tingling and pins and needles in arm and hand - swelling and tightness in hand and arm a year later! R. side of face started to swell/droop shortly after injury - somedays worse than others. Been on Lyrica/Naproxen/Amotrypralene/pain killers..........
This has been depressing not to mention a year out of my life in pain and disfigurement..........very dissapointed - at a total loss as Dr's have not been able to figure out or diagnose - which can be positive once the pain and swelling have gone.
This is the first time I have come accross something that explains what I am going through - and there is a name for this (TOS) Thanks!