Howdy and Good mornin'

i think this makes week 3 or 4 or maybe 5 of RULE-OUT-ITIS! That is what my doctors have caught (sure took them long enough). but slowly we are putting the puzzle of my life back together (you know it always amazes me how we can take a perfectly good picture and chop it up in to a million bits and then package it as a "child's toy" to be played with and reassembled!)


Well my life is and has never been a child's play and that is ever true for the doctors. However, in the past 5 weeks we have made some progress. Here is my top 5 things of what it is NOT!


5) NOT diabetes
4) all major organs check out OK!
3) NOT vestibular system problems (not the cause of my balance issues)
2)NOT conversion disorder
1) NOT NOT NOT NEVER HAS BEEN Myasthenia Gravis!!!! (GERRR that is what i was misdiagnosed with for over a year and treated for with icky hard on the body meds that i didn't need!)

Now that we know somethings that it is NOT lets take a look at what it is...

1) Visual problems
- pain behind left eye when moved
- blurry vision that looks like doubble vision but on a smaller scale in left eye when it is the only eye open
- eye moving to the beat of it's own drummer (left eye moves uncontrollably during an "flare up")
- macro double vision (where i see two images side by side in addtion to the micro doubbling from my left eye!)
- all of the above during the last flare up.

2) Balance problems (me sea legs are at it again! I walk like a drunkard and sound like one too half the time).

my cane and i are great friends b/c of this sea legs problem.

3) The medicine for the Myasthenia Gravis was masking the sx to the point that the doctors became as confused as i was!


I have my MRI of BOTH the BRAIN AND SPINAL CORD (cervical - neck - portion) next week (thurs April 17th 08) and I go back to the neuro today to try and see what i can do about this last flare up that i had.)

so the back and forth up and down goes on and on till we arrive at the correct dx. At least they are listening to me now!

I'll keep ya'll posted!
and bobcat (Rachael)