oh, Tami, that's heartbreaking!
I hate to think of you being in so much pain.
since a work injury, I've had low-grade constant pain since 1992.
my vertebrae are constantly popping out of alignment, especially since the MS has gone SP, and my muscles are weak and/or spastic.
so I SERIOUSLY empathize with you.
but I know nothing about Spina Bifida, but my heart goes out to you, and my prayers are with you.