Hello Linda and another Welcome to NeuroTalk here. You really have alot on your plate, so I'm glad you found us. I don't have alot of knowledge on Chiari's, but my niece has it and her headaches are excruciating too.

She is on a pretty good dose of Topamax, but it doesn't take all the pain away. The surgeon wants her to have corrective surgery for it, but she is hesitant at this time.

Please take a look around and make yourself at home.