Wow, you've had an amazing journey.
So what was the new information (or new doctor?) that spurred this new (and hopefully final) diagnosis? Did you have a new MRI, a new LP, a new doctor, or what? (Sorry I haven't kept up here well.)
Ah, as I said in another post just now (to bobcats), you can knock me over with a feather!

I didn't believe it was possible for longtime limbolanders to get a definitive diagnosis. (Um, I still don't... you must be in a tiny percentage... or else someone's going to take back your diagnosis tomorrow, or next week, or next year... just so's not to make me a liar!

)
Anyway, tante, very best of luck to you with treatment and control of your symptoms. I hope you have no more of the cancer-junk scares and that type of stuff. Take care!
Nancy T.