Dear Bobcat
I can so relate to what you have conveyed in your analogy!

we went thru no dx and misdx ups and downs for my son with both his Tourette Syndrome and Crohn's Disease. It was a scary time of uncertainty & confusion.
As sad and challenging as it was to finally get accurate dx, yet it also brought a sense of releif as we knew what IT was and could work to try to make his life as good as possible, even with IT

I hope you do get clarity in what your sx mean, tho more than anything I hope they will diminish or just go away

lifting a prayer for you
Cheri