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Senior Member
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Join Date: Jan 2008
Posts: 1,090
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Senior Member
Join Date: Jan 2008
Posts: 1,090
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Quote:
Originally Posted by celieb
Just wondering why many of you ended up on Ty?
Copaxone didn't work for me with side effects, history of depression rules out A and B so I think my specialist will say Ty (that's what my local neuro thinks, but, wants the hopkins okay)
Since stopping copax I had a "honeymoon " period and then went downhill. I'm having a relapse and am doing the best I can.
How long does it take for Ty to "work"
Thanks, Carrie  |
Carrie,
I do not know how long it takes for Tysabri to slow progression. I have had many "doses" of Tysabri juice and I am not sure yet if it has done anything. I will draw my final conclusions after my 25th dose (about this time next year) unless I have some adverse reaction to it.
I hope that it works for you.
The reality is that we will never know if it is working because we have nothing for direct compairson (i.e. you on Tysabri vs you not on Tysabri). The best that we can do is look at averages within the Tysabri population and between all other DMD medications.
It is a statistical problem no matter how you look at it.
The good news is that more people are reporting good results than are reporting bad ones.
Do whatever is best for you. Try it for a year and decide if it appears to be helping. Then decide on what to do next.
I have attached my "progress" graphs below to give you an idea of how it is working for me.
-Vic
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