Junior Member
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Join Date: Sep 2007
Location: Maine
Posts: 17
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Junior Member
Join Date: Sep 2007
Location: Maine
Posts: 17
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Now What
Husband came in to MMC 13 days ago, crisis situation, did not have to ventilate, had 5 plasmspheresis - every other day - then two IVIG one day apart. Lungs looked abnormal, all tests (endoscopy) came back normal, no pneumonia, infection, bateria, or cancer. Barium swallow test yesterday they saw aspiration, did again today w/many docs and looked normal. Still very weak, 4.5 of oxygen through bypap machine. On mestinon, prendisone, cyclosporine, etc., etc., Anyone else been there?????? We seem to be at the end of our ropes here!!! Very frustrating.
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