I remember finding a forum of lovely people a while ago with this and other similar complaints...do a "google" and have a look around...I know there is one out there...If I remember its name or find it I will post here for you...dont give up , you are not alone and these girls were really really nice and I'm sure they would love to see you.
Okies...found the site I was thinking of...
http://www.tipna.org
there is also this one
http://www.vulvodyniasupport.com
hope you find some new friends...good luck