Heh I was just reading your post. I have NF1 so do bothof my chidren. I am by no means a medical doctor but I am Massage thereapist. It sounds like you may be expeirencing siatica. I would get checked for the NF if that is a concern. My son is having some issues with the NF he is 6. Anyhow I would defanitly make an appointment and ask if it's siatica. Just a thought
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Originally Posted by Lois Bernardin
I was diagnosed with ms in 2001. Symptoms have been very mild. I am presently on low dose Rebif. I am presently having severe pain in left buttock and down the left leg. It is not bad when lying down, but becomes very painful when sitting, and when in the process of getting up or lying down. I am awaiting results from ct scan. At this time we don't know if this is related to the ms or not. There is also a family history on Neurofibromatosis, so there is a possibility of a spinal tumor. I am presently on 50 mg. Fentanyl patch, and200 mg Celebrex. I am becoming very impatient while waiting for ct results. It has been ten days since scan was taken. Anybody experience anything similar?
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