Hello Frances.
It's so sorry to hear of your NF. Unfortunately I don't know much about the condition myself, but we have lots of wonderful people here on NeuroTalk, and maybe you'll find some who are more informed than I.
In the meantime, have a good look around the site, and get to know some of our members. Hopefully you'll achieve the support that you're seeking.
Don't be shy, I'm sure you'll fit right in
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