Hello Laura and Welcome to NeuroTalk. I'm glad you found us. I can't give you any vision about NF, as I don't know anything about it other than what I've seen on a medical show or channel on TV. But, I am a Mother of a chronically ill child, so I understand your frustration and fear.

One other thing I want to mention is that NeuroTalk has so many caring members, that this can be a place for you to come to for not only information that may be helpful to you and your twins, BUT also for hanging out w/members who are here for one reason or another.

I hope you will take a look around the boards, make yourself at home and join in anywhere. I really look forward to seeing more of your posts, Laura.