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Old 04-17-2008, 09:04 AM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
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15 yr Member
LizaJane LizaJane is offline
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LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
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Jarrett--The doctors showed way too little interest in what I had to say, unfortunately. But the protocol I followed is the one posted in the stickies. There's a list of supplements, and the advice: use it or lose it. You have to keep trying to use muscles that you cannot feel, or which are weak, to keep stimulating the nerves leading to them.



Quote:
Originally Posted by jarrett622 View Post
I agree with you, doctors can do more damage than good sometimes. Especially when the patient knows more about their condition than their doctor does. My experience with doctors the past few years has been anything but reassuring. However, it seems I've now been blessed with a new NP that actually seems to know about PN and the issues I've had to focus on. So in that dept I have much hope.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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