MrsD, you are correct about we "newbies". I'm incredulous at all the information. I discovered this site only a few days ago and I've such mixed emotions. Mostly upset with myself that I've just sat back for 19 years and done nothing about my neuropathy. No one ever took it, the disease, seriously. I had a young son to care for, so I just kept putting one foot in front of the other.....when I should have also been researching. Back in the late 80's we did try, but there was so little information available....but that's no excuse. It wasn't until I couldn't be intubated that it was taken seriously.....and I've no one to blame but me. I'm going to set aside time everyday to read the PN threads.....I'm going to learn......and take charge of my care!