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Old 04-18-2008, 06:36 AM
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life well lived life well lived is offline
Junior Member
 
Join Date: Jan 2008
Location: Maryland
Posts: 16
15 yr Member
life well lived life well lived is offline
Junior Member
life well lived's Avatar
 
Join Date: Jan 2008
Location: Maryland
Posts: 16
15 yr Member
Cool

Poor planning, unplanned things.
- In a lot of ways, living with my wife has been good training for this. She's one of those people who never plans for the weekend till Friday. That used to drive me nuts, but now that I have MS and we've started foster care for sick kids...Friday often seems to early to get a real picture of what the weekend will be like.

Not being in control, having to rely on others.
- I hate hate hate this.

Trust
- At this point I don't really remember what trust feels like. It wasn't always so, but now it's just kind of like I've learned contingency planning for when I'm let down.

Faith & Hope
-These used to be my strong suit...now it all depends on the day. I have to say that looking at my daughters huge smile and listening to her 2 year old giggle...there's certainly enough beauty in this world to give me a little boost in my spirits.

MRIs
-Can't help it, I like em. I fell asleep on Tues in my last one with a brief moment of waking for the contrast. The time before, the mirror was set up so I could see a clock. I amuzed myself by trying to close my eyes for exactly a min. The closest I came was 58 seconds. It's harder than you would think. I had more success going for 30 seconds where I was able to get with in one second a few times...In any event, any games to keep the mind occuppied while you have to sit there. I kind of view it like time I spend mowing the lawn. It's time where I can shut down the mind, and I'm almost guaranteed to meet expectations. Those times where I'm almost certain to meet expectations are times I treasure.

We had a mens' with MS meeting a while ago in MD, and one of the things I took away from the group was "you own this disease when you can make fun of it." Seriously, MS is one of those diseases that frequently makes us act in ways mideval court jesters would be proud of. The only advice I have from my 18 months with MS is "own it to the extent you can." It sounds like you've already got a pretty good sense of humor about it.

Last edited by life well lived; 04-18-2008 at 08:14 AM.
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