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Originally Posted by sheena
Update - My infusion for the 15th was canceled. Infusion center Neuro (not mine) required a clean X-Ray and blood tests. Bottom line - they thought I was lying when I said I was well and had been. I passed both tests and am set to go again on Mon.
I have not posted b/c while I may understand this that does not keep me from being angry. My anger was too high to allow me to post. I would have said some very bad things. I know me and my mood swings. LOL
This may have even been good for me. I have 1 known side; swelling mainly in my left leg from calf to foot. It is down a bit in last few days so that is good. I hear Ty hits one hardest the 1st time then kind of easies off. Does anyone know if true or not? My neuro does know of this and paid no attention to it. Thank You
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Sheena,
I am not aware of Tysabri hitting hard the first time that you use it. For me, it seems that the infusions have always been the same: mundane and without side-effects. But that is just me. Others have had reactions to it. If I have one bad reaction to it, then I am stopping for good. Besides, I would love to save the $36,000/year it cost me just to use it. The cost, even with my insurance, is obscene.
-Vic