Quote:
Originally Posted by Victor H
FYI - to be sure that our home cannot be attached to pay medical bills, we sold it to a charitable trust. If we had not and then could not pay our medical bills, the home would be sold at auction to pay off both Biogen and the infusion center.
Hence, legally I do not have a dime to my name. Nor does my wife.
There is no other way of protecting hard-earned assets.
The price for MS stability is financial instability,..., even if you have health insurance.
What I did not add to the previous "Tysabri Cost graph" are the other associated bills: actual health insurance cost per month. That is an additional $750/month or $9,000 per year.
Hence, our actual medical bills total $45,000.....each year while on Tysabri.
Before I was insured, my medical bills were $37 per month on average (including office visits and Avonex). But, if I got hit by a truck...and the hospital bills were massive...then we would have been nailed to the wall for life.
What a medical system....
LOL
-Vic
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Vic,
You do what you have to do. And you are right that it could be worse. Congrats on all of the improvement!
I'm glad your fatigue and endurance have gone up and the vertigo is waning. I love the graphs. I can tell you are a scientist at heart.
But honestly, this health care system we have is just crazy. I'm still speechless from Tysabri sticker shock (plus those insurance costs). I didn't know one could sell a house to a charitable trust. It sounds like you have been financially savvy in protecting yourself. I know in general there are people not getting treated for MS because they cannot handle the costs, even with insurance. It's tragic.
By the way, I see you are in Riverside. How is the weather in So. Cal. these days? I lived in San Diego for 8 years and miss it terribly.
Natalie