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Senior Member
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Join Date: Aug 2006
Posts: 1,860
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Senior Member
Join Date: Aug 2006
Posts: 1,860
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ALS registry
Very happy to assist in this endeavor. And it is SO easy to do. Wish there also existed a Parkinson's registry--think that would help the efforts in discovering effective therapies, causation --and possibly a cure! I am new to the political aspects of PD--what is involved in developing a registry for PD? I know the Ali Center has a "voluntary" registry--though when attempting to register online, the information I was not on a "secure" site made me wary of pasting my husband's medical history onto the internet. madelyn
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