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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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A reason for hope
I was going through my badly neglected journal this afternoon and found something encouraging. There is a self-rating form called the UPDRS Rating Scale. It is a bit lengthy and you rate yourself in about 35 areas. Low numbers are good and the worst you can do is 128. Counting today I have filled it in 4 times in the last three years. The following are my unmedicated totals:
11/06/05 - 78
07/05/06 - 73
11/08/06 - 72
04/20/08 - 67
Those numbers should not be dropping by the standard way of thinking. Something is working, but I can only guess at what it is. Ginseng? MJFox are you out there?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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