New Member
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Join Date: Apr 2008
Location: Southern Oregon Coast, mouth of Coquille River
Posts: 3
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New Member
Join Date: Apr 2008
Location: Southern Oregon Coast, mouth of Coquille River
Posts: 3
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ET ...go away, do not come home!
Firefly, it appears that you have one symptom I haven't experienced - head shaking. I'm glad to hear that you have found relief with propranalol, it didn't work for me. In fact, 40 mg bid didn't do anything, good or bad. I have not seen a neurologist for several months, but when I last saw her she didn't believe any of the 'standard meds' for ET would be worth the potential side effects for me, and hesitated to recommend DBS. Recently, my internist prescribed Ativan 1 mg, it primarily made me very tired, with little reduction of tremor. The only med that has given some relief is diazepam 5 mg. That's a mild dose, but I'm not anxious to take it. My tremor is definitely increasing in frequency and intensity. The only time I feel completely free is while lying down or sitting in the recliner with my feet up. When it's most bothersome is while typing, eating, playing cards or other board games. Concentration appears to lay a fertile opportunity for lotsa shakin. Good luck to you, and don't hesitate to take the meds that make life better.
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