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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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can't stop crying
i can't type much - i dont think i can handle this.
the infusion center just called to tell me they have to cancel my may 2nd appt for my second infusion - they just got the doctor's May schedule and he won't be there and the other doctor on can't see me, he's only seeing a few people who have chemo that day. they cant take me till may 9th. that's 5.5 weeks after my first infusion (april 1) and they said its no big deal, people go that far apart. i dont get how they can just cancel people like this. when i make the appt, i have to plan it - take off of work, find someone to bring me, i didnt feel well for a few days after the last one, etc. i have plans the weekend of may 9th (it's mothers day weekend) that now i will not only have to cancel, but will lose the $ i've spent.
i cant stop crying. i just dont get any of this. i asked if this is gonna happen every month and she said she didn't know, she cant help it, she just got their schedule.
once again not only the unknowns of MS get to win, but the frickin' unknowns of this tysabri $hit get to win.
yes, i just left a message for my caseworker, but what's he gonna do? force them?
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